Clowning around

After getting so far unfortunately we have had quite a big step back today. Over the last few days Thomas has repeatedly stopped breathing (apneoas) as well as refluxing (which is a form of vomiting). The doctors are hoping that these are connected and are treating the cause of reflux (basically too much acid in the stomach) with drugs.

As a result of these episodes, over the last couple of days, Thomas has required constant handling by nurses, doctors and parents, and is exhausted. This afternoon the doctors finally took the decision to put him back on a ventillator, to make him breathe and give him time regain some strength. This also requires Thomas to be given some morphine again. As I'm sure you'll understand, its quite uncomfortable having a tube down your throat to your lungs.

This evening, he is more restful. However seeing Thomas like this does seem somewhat like deja vu. The nurses sent us home early tonight, insisting that we get some rest and suggesting we open a bottle of wine, which we've decided to do. But before we sign off we thought you'd like to see a picture of Thomas resting and dreaming of clowns.